KidneyCancerResource:Community Portal

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Copying Letters to Patients

The Copying Letters to Patients initiative is a government objective which originated in the NHS Plan: "letters between clinicians about individual patient's care will be copied to the patient as of right".

Click here for more information

To Contact Your MP, MEPs & Councillors

To contact your Representatives who work for you Click Here

Organisations UK

Name Link Mission Logo
The James Whale Fund for Kidney Cancer www.jameswhalefund.org To raise RAISE AWARENESS OF KIDNEY CANCER in the UK, raise funding for that purpose and provide information and links for patients, carers and families James Whale Fund
Fight For Life www.kidneycancersupportnetwork.com Kidney Cancer Support Network ?
BMJ www.bmj.com/ British Medical Journal ?
Cancerbackup www.cancerbackup.org.uk/ Cancerbackup - help Line with trained and experienced staff ?
CTRT www.cancertreatment.org.uk The Cancer Treatment and Research Trust. Mount Vernon Cancer Centre CTRT
Kidney Cancer UK www.kcuk.org Support and access to information
Prostate Link - UK UK Prostate Link for patients and professionals looking for info. on prostate cancer linking to the best resources already in existence.  ?
eCancerMedicalScience www.ecancermedicalscience.com ecancermedicalscience aims to improve communications between sub-specialised cancer scientists and clinicians  ?

Organisations Outside of UK

Name Link Mission Logo
ACOR www.acor.org Support and access to information

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AKOS www.akcos.org Australian Kidney Cancer On-line Support  ?
BCAN www.bcan.org Bladder Cancer Advocacy Net.  ?
Bladder Cancer Web Cafe www.blcwebcafe.org Bladder Cancer Web Cafe  ?
Bladder Cancer Risk Tables www.eortc.be/tools/bladdercalculator/default.htm Bladder Cancer Risk Tabulations & Calculator  ?
Bladder Cancer Survivors Net www.acscsn.org/Forum Bladder Cancer Survivors Network  ?
CKCC www.ckcc.org California Kidney Cancer Center  ?
Kidney Cancer Association www.kidneycancer.org Access to information
Kidney Cancer Canada www.kidneycancercanada.org Canadian Kidney Cancer On-line Support
]]Mayo Clinic www.mayoclinic.com US Based not for profit clinic specialising in Complex illness. There Kidney Cancer Grading is also rated highly in the UK. mayoclinic.com
PLWC / People Living With Cancer [1] A comprehensive site for all who are living with cancer of any type, in some way. Many helpfull ideas and tips. Linked with ASCO  ?
Name Link Mission Logo

Forums & Chat Groups - UK

Name Link Purpose
KidneyCancerResource's own Forum [2] Growing along side KCR and offering linked support, information, Q&A and related Chat.
The James Whale Fund for Kidney Cancer www.JameWhaleFund.org/Forum A very active self-help and support, chat & information Forum in the UK with close links to KCR.
Kidney Cancer UK www.kcuk.org/vbulletin A self-help and support Forum in the UK
UrologyCancerResource's own Forum [3] Growing along side UCR and offering linked support, information, Q&A and related Chat.

Forums & Chat Groups in English World Wide NOT Including UK

Name Link Purpose


Mail Lists in English World Wide

Name Link Purpose
ACOR www.acor.org A self-help and support group. In the US but has global reach. You will need to register. A Huge archive.

Related Blogs in English World Wide

Name Blogs Description
David Foster David Foster's Kicking Kidney Cancer’s Arse Dave was diagnosed with Advanced Renal Cell Carcinoma, Stage 4, the sixth deadliest cancer, behind lung, liver, and breast. In emails to his ‘wellness group’ of friends and colleagues, Dave began chronicling his battle with the disease. In this blog, Dave Foster continues to “kick cancer’s arse”, sharing his story with a wider audience.
The Cancer Blog The Cancer Blog Stories on Cancer
A Journey of Another Kind [4] Jane Thompson, known to many as JaneyB, tells of her journey with Kidney Cancer as a Mother & wife showing humour, fear, determination and the fight for a future with HD-IL2
The Accidental Tourist [5] Kristy Rae Richardson's courage in the face of no health cover in USA where welfare fails the more vulnerable. She sets a standard never reverting to self pity or anger as she battles for life.

Government Organisations UK

Name Link Mission Logo
N.I.C.E. www.nice.org.uk/ NICE is an independent UK organisation responsible for providing national guidance on promoting good health and preventing and treating ill health. A QUANGO NICE

Government Organisations EU NOT Including UK

Name Link Mission Logo

Government Organisations NOT Including UK

Name Link Mission Logo
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Disclaimer

Kidney Cancer Resource (KCR) is not influenced by sponsors. The information contained herein is not intended as a substitute for the advice of an appropriately qualified and licensed physician or other licensed health care provider. The information provided here is for educational and information purposes only. Early accurate Diagnosis (Dx.) saves lives. Please check with a physician if you suspect you are ill, never ignore Symptoms. To help your health care specialist make an accurate Diagnosis please keep notes of dates, times and details of your Symptoms. We are not offering medical advice nor do we consider links, individuals or articles accessed through this site to be offering medical advice.

E&OE - Errors & Omissions Excepted

As much of the information posted on this Web Site for peoples convenience is of a medical or technical nature, and may be a matter of life or death the E&OE is a Disclaimer showing that to the best of our ability information is accurate and correctly written or transcribed. Before acting on information on this site you are responsible for checking it with your relevant medical team. We can not be held responsible for any Errors & Omissions made; nor for information on links and articles provided in good faith.

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